In The News
Alliance "Spokesmom" and Husband Spread Education and Awareness
In a heartwarming feature story in Colorado Parent and a touching Fox 31’s Great Day Colorado segment, the Rogina family shared how the PKD-Free Alliance helped them stop the cycle of polycystic kidney disease (PKD) in their family.
After Natasha Rogina’s diagnosis, she and her husband Anthony pursued IVF with preimplantation genetic testing (PGT-M) to ensure their future children would be PKD-free. Thanks to a grant from the PKD-Free Alliance, they received financial support for fertility treatments and genetic screening.
"It’s not for everyone, but for us, that’s the decision we made, that if there’s a way we can try to prevent our children from having this disease… we want to explore that," says, Anthony.
Now parents to a healthy daughter, Juliana, Natasha serves as the Alliance’s Chief Spokesmom, using her voice to inspire and educate other families navigating PKD.
Read the Colorado Parent article at this link.
Click the video preview below to watch the Great Day Colorado segment.