Mother of Alliance "Spokesmom" Shares PKD Family History in Heartfelt Blog Post

Patricia was only 17-years-old when she was diagnosed with PKD, adding to the long lineage of affected family members.

"My biggest fear wasn’t just living with the disease; it was the 50/50 chance of passing it on to my children as PKD is an autosomal dominant disease in my family, and that knowledge weighed heavily on me," she notes.

In a new blog post for Patient Worthy, Patty describes the "waiting game" of her disease progression and how a selfless act of living kidney donation from her husband via a paired donor exchange allowed her to receive the Gift of Life eight years ago at age 52.

Patty is the proud mother of Alliance "Spokesmom" Natasha and grandmother of PKD-free granddaughter, Juliana. Natasha and her husband Anthony welcomed Juliana in December 2023, utilizing assisted reproductive technology with Alliance grant funding.

With September's PKD Awareness Month only a few days away, the entire family is pleased to share Juliana will be a big sister to a PKD-free sibling next year!