Clinical trials play a critical role in advancing treatments for polycystic kidney disease (PKD) and many other medical conditions. If you're considering participating in a clinical trial, it's important to understand not only the potential benefits and risks of the study itself, but also how participation may affect your future family-building goals.

Written by Alexia, a mother sharing her family’s journey with autosomal recessive polycystic kidney disease (ARPKD).

Jim and Carol shared with the Alliance what it means to have a granddaughter born free of PKD.

How IVF with PGT-M and support from PKD-Free Alliance helped one family prevent PKD from reaching another generation.

The Spoonie Podcast focuses on helping those with chronic conditions to live well. Host Emily Fraser speaks with pkDO founder Rich Kellner about the 100 PKD-free Babies initiative and its goal to end PKD with the next generation of children.

In a conversation with James Myers, host of Kidney Stories, pkDO founder Richard Kellner shares how his family has been impacted by PKD and how the foundation is working to bring about a PKD-free world.

I’m Natasha Rogina, a teacher living in Colorado. I discovered I had PKD when I was a teenager. My mom also has it. When my husband and I decided to start a family, we knew we would proceed with IVF to ensure a PKD-free pregnancy.

Friends, students and teachers help tell Millie's story about her search for a healthy kidney donor.

A year ago in January 2022, we launched pkDO with a mission to End PKD. Since that moment, we have had many generous supporters, experts and medical professionals who helped to bring us closer to that goal.